The purpose of Cecilia’s Advice, LLC is to spread awareness of this rare chromosome deletion and raise funds for the Phelan-McDermid Syndrome Foundation.


Cecilia’s Advice Inc is a 501c3 in the state of Indiana.  Our hope is to generate awareness through fundraisers to aid in the mission of the Phelan-McDermid Syndrome Foundation which states “to improve the quality of life of people affected by PMS worldwide by providing family support, accelerating research and awareness”.  Cecilia’s Advice, Inc. goal is to raise money for the PMSF in the way of bi-annual fundraisers along with other events throughout the year. 


Join us on Instagram @ceciliasadvice where we Share advice from our determined Cecilia and raise awareness for Phelan-McDermid Syndrome.